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Day 25 Post Cystectomy

12/15/2019

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I woke up still feeling pretty bad - still having blood in my urine.  But I went ahead and got a shower - thank GOD for the shower chair!  I was debating about changing my whole urostomy bag and phlange, but the phlange is still holding nice and tight so I decided to just change the bag.  I can't believe I lasted this long with that blasted Hollister bag I don't like.  I got out a new ConvaTec bag and was so happy to throw away that disgusting Hollister bag.  Another thing I didn't like about it is when I woke up in the morning after being hooked up to the larger night bag all night, the Hollister bag was shriveled up like a prune - all the air was sucked out of it.  I don't think that was all that great for my stoma to be plastered to the side of the bag like that.  maybe that's also why I was having blood in my urine - maybe it was pushing on the stents or something.  Anyway, I was so happy to be back with a ConvaTec bag!  Yay!  I got dressed and did my hair, watched our church service online, and then Tim and I went to a meeting at church.  Once again, I was thinking it would be about an hour but it was closer to 2pm.  I came home and took a nap and just rested for most of the rest of the day.  Tim and I did take a walk around dusk, but it was slow going and painful.  Ugh!  I sat out in our fireplace room with my feet up and wrote thank you notes while Tim watched football.  My oldest came home from college for the night - since he is an RA he has to go back for some meetings over the next 2 days but will be back for the Christmas break Tuesday night.  The people who were going to bring us dinner tonight gave us $100 in cash to order whatever we wanted, so I got on Ruby Tuesday's website and we all picked something we wanted for dinner and were able to get something for everyone for less than $80.  So I still have $20 to order pizza one night!  We were both pretty tired by 10pm so we went to bed.
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